Thursday, April 9, 2015

Daily struggles of fighting CF

Why are CFers so tough.... Could you handle this daily schedule, plus school, homework, extra curricular activities!? 
Not to mention hours of surgeries, and months in the hospital a year! And I have two with this disease...... WE NEED A CURE, not more medicine!!

Daily medications:
Inhaled:
Dueoneb 4xday ( 9/1/5/9)
Pulmozyme 2xday with PEP (1pm/9pm)
Hypertonic saline 3x day (9am/1pm/5pm)
Tobramyacin 28mgx4 2xday( 8 pills day)
Advair 115/21 2xday
Cayston 75mg 3xday
Vancomycin 500mg 2xday
Dulera 2x day

Vest 3-4 xday ( 1pm/5pm/9pm) 40 min each 
Acapella 2x day (9am/9pm)

Po meds:
Bactrim 800/160mg 2xday
Prednisone 60 mg 2xday
Keflex 250mg 4x day
Viokase 20,000 units 12pills a day
Singulair
Bisacodyl once day
Loratdine
Ibuprofen 600mg
Sertraline 25mg
Vitamin D 1000u twice day
Adek vitamins 4 pills day
Benadryl 25mg 4 xday before 
Zenpep enzymes 6 tabs with all meals and snacks and tube feeds(30/day)
Flonase 2xday
Saline rinses 3-4xday
Bactroban with Pulmozyme and acetic acid solution
Miralax 2xday
Colace 1xday
Ondansteton 4 mg
Cyproheptadine 4mg 2/day
Tylenol with codeine every 4 hours pain

Feedings:
Two cal HN 5 can night
Pediasure w Fiber 5 cans night
2500-3000 calories day... More when sick

Glucose checks:
Morning, after meals, midnight thru Feedings.

Iv medications:
Vancomycin 2/day
Cefepime 3/day
Tobramycin
Linazolide every 6 hours

106 meds day, 9 hours IV meds, 8-9 hours Feedings at night, 2 hours of airway clearance, plus 2 hours of treatments. 

This picture shows only two weeks worth of meds!!! 

8 comments:

  1. Get to us at eka herbal home and get your Agbara powder which you are going to mix with Lime Orange and you will take this for just 2weeks and you will tell us what your Doctor will say about your Fibroid,,We cure this totally without regrow again, Within 2week your Fibroid will be shrink out completely, get to us at (dreka14demons@gmail.com)..,,If you live in UK, You can get to Mrs Laverne Sampson on via (laverne940@gmail.com) to get your Fibroid totally shrink out and get pregnant easily,,,, blockage of Fallopian tube is an infertility that can never make woman have a child if not totally clean and unblock the tube, The both Tube must be properly functioned, Our Eka herbal cleanser and Agbara powder which you are going to mix with Lime Orange will unblock your fallopian tube and make both of your Tube functioning and you will experience the major regular period which you mighty not be experiencing now,,Just get to us and our product will be posted to you..Your Husband weak erection and watery sperm will be cured.

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  3. Am pela, thanks to Dr Osaze who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr osaze's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email:
    drosaze39@gmail.com or call him on +2347089275769

    ReplyDelete
  4. I give thanks to Dr Ebhota for helping me get a permanent cure to Uterine fibroid. I have used different western medication without any improvement, And I could not have a child of my own. I had heavy bleeding, frequent urination, a bulky stomach, and cramping. My bleeding is sometimes so heavy that I can’t go out. I go through 9-10 pads in a day. It is so uncomfortable. I have tried everything you can imagine because I’ve had my fibroid for 18 years but none of them have really worked. They just make you feel like you’re doing something but at the end of the day its not really much of a relief. People advertise all sorts of “Fibroid Cures”. I’ve tried all that you can imagine and they worked for a little while, but it’s not working out you have to keep on going. You cant really stop taking them. I got the contact of Doctor Ebhota from the testimony of people on the internet, and I contacted him through the Email and explained every thing to him. then he sent me his product which I used for 2 weeks. Now am completely cured so I really want to tell this to the world that there is a permanent cure to Fibroid. contact him on drebhota123456@gmail.com or whatsapp: +234935324155 he can help on any health issues

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    Replies
    1. Greetings to everyone reading this testimony, I am Dan Morgan, i am here to
      testify of a great man who was able to cure me permanently from herpes
      Disease just with his herbal medicine,i have been herpes Positive for 5
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  5. Hey Gina! I saw your comment about Dr. Uduehi’s medication concerning Fibroid sometime ago and you were right, I tried it and it worked like magic for me. It was like hell living with FIBROID all this years until now, no more pains, bleeding and no miscarriage and I would've come with my testimony before now but I have to wait for a couple of months to see if it will regrow again but there's still no sign of fibroid, I also went to the hospital for test and still i was tested negative. All thanks to Dr. Uduehi and to you too Gina. And for anyone out there who wish to try can reach the doctor through: (+2347084878384) uduehiherbalcare@gmail.com

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  6. As a sign of gratitude for how my wife was saved from fibroid, i decided to reach out to those still suffering from this.
    My wife suffered from fibroid for more than 20 year of marriage after our first son and it was really tough and heartbreaking for me because she was my all and the symptoms were terrible, she had irregular and painful menstrual flow and the size of it was 5cm, and she always complain of stomach pain. we tried various therapies prescribed by our neurologist but none could cure her. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and she left the contact of the doctor who had the natural cure to fibroid. I never imagined fibroid has a natural cure if not surgery not until i contacted him and he assured me my wife will be fine. I got the herbal medication he recommended and my wife used it as instructed by Dr Godstime, and in one months time we went to the hospital for scan and the doctor confirmed that there is no trace of fibroid and now she is fully okay, even up till this moment she is so full of life. fibroid has a cure and it is a herbal cure contact the doctor for more info on: Drgodstimehealinghome@gmail.com or WhatsApp +2349063469910 on how to get his medication.  

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  7. I was married at 32 and immediately tried to get pregnant. When I was unable to conceive I had blood tests for fertility and was told that I had an FSH (follicle stimulating hormone) of 54 and would not be able to have children. Even though the doctors knew that I had been diagnosed with Hashimoto’s thyroiditis since age 25, no one bothered to check my thyroid levels. my TSH was measured at .001. My Synthroid dosage was lowered. a friend advise me to contact a spiritualist who help with fertility with his medicine, i collected his contact and explain my situation to him he prepared for me a herbal medicine which i took as describe by him. became pregnant very quickly, I had a successful pregnancy. I have my baby august 2017. to get pregnant at age 35 with my 2nd child in september 2019, thank you sir , this is his email contact if you require his help babaka.wolf@gmail.com or Facebook at priest.babaka

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