Just one of our CF struggles

It's a new year. And due to high medication costs, insurance decides to drop both Lynsey and Jon. Found another insurance company, but insurance rejected ALL of their meds, so our amazing CF Drs and nurses sent in authorizations to get them approved. Then pharmacy called saying they had trouble ordering these meds because most of them are specially and cannot order. So yesterday after 4 hours I transferred half of their meds to CF pharmacy who specializes in CF meds..... Praying now insurance approves!!!!! Just another struggle we face every year. Next is paying out of pocket and co pays, but that should be taken care of after these meds are ordered!!! Without insurance these meds listed would cost us around $30,000 per child per MONTH!!!!!!! We need a cure. Please pray for this insurance issues! 

Daily medications:
Inhaled:
Dueoneb 4xday ( 9/1/5/9)
Pulmozyme 2xday with PEP (1pm/9pm)
Hypertonic saline 2xday (9am/5pm)
Tobramyacin 2xday
Advair 2xday
Cayston 3xday
Vancomycin 2xday
Vest 3-4 xday ( 1pm/5pm/9pm)
Acapella 2x day (9am/9pm)

Po meds:
Bactrim 2xday
Viokase 10 pills a day
Singulair
Allegra
Vitamin d 4pills 2xday
Vitamin k
Adek vitamins 2x day
Benadryl 25mg 4 xday before vancomycin
Omeprazole
Pepcid 2day
Prednisone 40-50mg day
Zenpep enzymes 5 tabs with all meals and snacks and tube feeds(30/day)
Flonase 2xday
Saline rinses 3-4xday
Bactroban
Miralax 2xday
Colace 1xday
Check blood sugars before meals and 2 hours after and mid tube feeds
 Humalog Insulin injections if BS over 150


IV antibiotics when sick:
Vancomycin Iv 4 xday
Vyoxx IV 3xday
Ceftazadine IV 3 xday
Merpenum 3xday
Tobramycin 2xday