Daily meds

Have you ever wondered when you would take your last breath and what it would be like?  Thousands of adults and children struggle with this fear everyday, because they have an uncureable disease called cystic fibrosis.

Cystic fibrosis needs a cure for lots of reasons but the two most important reasons to me are two of my children who have been fighting this battle everyday of their lives, never know when they breathe in a horrible bacteria that may take their last breath! I can go on and on to give you the medical definition of this disease, but that does not do justice to the realities of it all.


Daily medications:
Dueoneb 4xday ( 9/1/5/9)
Pulmozyme 2xday with PEP (1pm/9pm)
Hypertonic saline 2xday (9am/5pm)
Tobramyacin 2xday
Ad air 2xday
Cayston 3xday
Vest 3-4 xday ( 1pm/5pm/9pm)
Acapella 2x day (9am/9pm)

Po meds:
Singulair
Allegra
Vitamin d 2xday
Vitamin k
Adek vitamins 2x day
Benadryl 25mg 4 xday before vancomycin
Omeprazole
Pepcid 2day
Prednisone 40-50mg day
Zen pep enzymes 5 tabs with all meals and snacks and tube feeds(30/day)
Flonase 2xday

Check blood sugars before meals and 2 hours after and mid tube feeds
 Humalog Insulin injections if BS over 150


IV antibiotics when sick:
Vancomycin Iv 4 xday
Vyoxx IV 3xday
Ceftazadine IV 3 xday